"I have so much pain that I faint from pain. Seven times on Friday, two on Saturday and four yesterday. I have also fallen out of the wheelchair once, out of bed three times, most recently this morning at six ... Had been in pain from hell, the one and a half hours ..."
About a year ago, Sara had a failed gastric bypass surgery which resulted in massive internal bleeding, leading to excessive weight loss. She lost about 80kg within a year which puts her to barely 40kg now; a 38-year-old mother of 3.
Furthermore, she suffers from constant cluster migraines. For those who are not familiar with this, these are the worst types of headaches a human being can experience. Imagine, it is said to be worse than getting burnt, having bones broken, or childbirth. Just think of the pain. And to add on to that, neurologists in Huddinge Hospital classified Sara's scenario as the worst case of cluster migraines in Swedish history.
Her failed bypass surgery and cluster migraines resulted in major neurological damage which led to memory loss and also made her develop anorexia. So now she can hardly eat or drink anything unless it's in very small amounts.
Sara has been in the Huddinge Hospital for several weeks now, and during the past weeks she hasn't been re-hydrated or fed properly. Her body is undergoing severe dehydration and she will soon be skin and bones. She needs a special mattress, which had been promised to her but never came, just to lie on because her vertebrae sticks out and hits the base of the ordinary mattresses giving her stinging pain while laying down.
The most unbearable of all, Sara has been put off of all pain relievers so she has no hope of having her pain reduced at all.
Sara was initially on Morphine but she was cut off from that because the pain reliever actually triggers headaches, so she was prescribed a weaker painkiller by the drop. When her attacks came, they gave her sleeping pills and little oxygen which does not seem to help at all. Everything she takes in are through tubes. Food, water, pain relievers. One night she had a seizure and the tube went out, and the only entrance she had to take in the pain reliever got infected causing the vessel to rupture.
"There are no more vessels to put a needle in when I'm totally down stung on both arms and feet. Needing a PICC line, but no referral has been sent. Referral to a dietician should have gone away on Sunday, last week ... a week and a half ago...No one has emerged."
"The day before yesterday, I was asked if I wanted something to eat, at half past eight in the evening. It was the first time all day I was offered food ..."
"I have so much pain that I faint from pain. Seven times on Friday, two on Saturday and four yesterday. I have also fallen out of the wheelchair once, out of bed three times, most recently this morning at six ... Had been in pain from hell, the one and a half hours ..."
Medical staffs all over Sweden need to start prioritizing. This is not the first time we are hearing about making chronic patients wait for nothing. (http://www.dn.se/nyheter/sverige/vantetiderna-skiljer-stort-for-cancervard)
This is a call for help!
For those of you who live in Sweden, I kindly request you to participate in the petition for giving Huddinge Sjukhus a wake-up call by taking care of a patient and prioritizing before it is too late. Simply go to this website, http://namninsamling.se/index.php#.UGwnzE3MhoE, scroll down to the red dotted box and put your name and city you reside in. THAT IS ALL.
For the rest of you who are reading this, please keep Sara in your prayers. Thank God for everything we are blessed with and pray for Sara. That is the least we can do.
Thank you.
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